About Addison

Are you ready to support a great cause and enjoy a fun filled evening??  Click here to buy your tickets and help support our sweet Addison, and everyone else living with type 1 diabetes, find a way to change the constant finger pricking, carb counting and insulin dosing that has to be done for them to live (among other things).  

A message about this event from Nancy and Art Golembiewski: 

Our youngest daughter, Addison, was diagnosed on November 5, 2013 with type 1 diabetes at the age of 3.  At the time of diagnosis, we really had no idea what being type 1 meant, or how it would affect our family, but we soon found out.  Addi can eat very little without checking her blood, and counting the carbs to determine how much insulin she needs to take with her meal or snack.  The only things Addi can eat without going through this process are carb-free vegetables, sugar free Jello, or sugar free popsicles.  She needs two to three hours between each meal and snack, and at the same time, she cannot go more than two or three hours without eating a meal or snack during the day.  She cannot play soccer, gymnastics or swim without checking her blood to make sure her glucose levels are high enough to sustain the amount of energy she will use for these activities.  She cannot go on play dates without someone trained to take care of her tagging along, and each and every play date has to be carefully planned to make sure she can eat when her friends do.  She is allowed to have up to three deserts a week, but we have to plan for these so that she is not at a birthday party and every kid but she is having cake.  We cannot just go get ice cream during summer on a hot day, go see a movie with an endless bucket of popcorn, or just stop for a hot chocolate on cold, winter days without planning and determining if she’s already met her quota of deserts for the week.  And we can no longer just call it an early night for everyone, because Addi has to have her blood checked two hours after her last meal/snack, which usually is not until 10:00 or 11:00 at night.  At least once a week, and more often than not, three times a week, we have to get up at 3 am to check her blood to make sure everything is ok and that no adjustments need made.   

But thanks to JDRF, and the research they support, Addi no longer gets up to 7 shots a day.  She now wears the OmniPod which is a wireless pump that holds her insulin and doses it out to her throughout the day based upon her blood readings and the amount of carbs she eats.  JDRF has so much on the horizon; the Artificial Pancreas, Smart Insulin, and Beta Cell Encapsulation just to name a few.  The last is the one that is most promising for Addi’s future as it is expected to be available around the time that she will be graduating high school, and it is a non-invasive procedure that would allow her to go up to 24 months without having to check her blood, count her carbs or give herself insulin. 

We are hoping to raise $10,000 with this event and move others to keep donating, so that one day Addi, and others like her, can know a life without finger pricks, insulin, needles or pumps and terrifying highs and lows.  And so that other parents, like Art and Nancy, can sleep at night without the fear of her blood glucose levels dropping so low or shooting so high that we need to wake her up to drink juice, or worse, have emergency care to help her.  

With thanks, Art & Nancy Golembiewski


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The Goal

2750 Raised
10000 Goal
24 Contributors